Implementing a State Based Stroke Registry: The “Why” and the “How”
- Mary George, Centers for Disease Control and Prevention
- Kathy Foell, Massachusetts Department of Public Health
- Marsha Wilde,
Colorado Department of Public Health and Environment
- Tim Aldrich, East Tennessee State University College of Public Health
- Al Tsai, Minnesota Department of Health
- Kerrie Krompf,
Emory University
- Laura Coe,
Massachusetts Department of Health
- June O'Neill, Massachusetts Department of Public Health
- Carol Murphy,
University of North Carolina
- Stacey Stoeckle-Roberts, Michigan Department of Community Health
- Nancy Patton,
Ohio Department of Health
- Moderator: Henraya McGruder, PhD, MS, Centers for Disease Control and Prevention
Session Objective
The objectives for this session are to:
- Learn the benefits/challenges and importance of a state-based stroke registry.
- List, compare and contrast three different state stroke registry funding options: federal, utilization of state resources, and utilization of partner resources.
- Explain how to sustain recruitment and participation of stroke registry partners and hospitals.
- Discuss hospital engagement strategies.
- Explain the types of data elements, platforms and tools (e.g., Get With The Guidelines-Stroke and other data entry tools) used in existing stroke registries.
- Discuss the systems level approach to stroke registries.
- Explain how data from the registry can guide system level changes.
- Explain quality improvement interventions from an outcome-based approach.
Session Summary
This session is for states that do not currently have a stroke registry but are interested in learning more about what a stroke registry is, how it operates, how to implement and sustain a state stroke registry. This session addresses quality improvement as one of the CDC priority areas.
Most of the session activity is didactic, discussing best practices, lessons learned, etc. This session also includes a panel discussion format.
There may also be an interactive, group activity where participants have to synthesize all of the information learned during the session in a case study example.
Session Materials
Resources/References/Web Sites/Tools
States that currently have PCNASR funding are resources as are non-PCNASR states that are fully operating a state-based registry. Tools may include graphs/charts depicting data findings, data collection tools, legislation that was written for stroke registries, quality improvement projects.
